The Chronic Angioedema Registry (CARE): Rationale, Methods and Implementation

• Authors: BUTTGEREIT T.; AULENBACHER F.; GUTSCHE A.; KOLKHIR P.; WELLER K.; VERA AYALA C.; MAGERL M.; FARKAS H.; GRUMACH A. S.; AYGOEREN-PUERSUEN E.; BARA N.; BEN-SHOSHAN M.; BERNSTEIN J.; BETSCHEL S.; BOUILLET L.; CABALLERO T.; CANCIAN M.; CASTALDO A. J.; CIMBOLLEK S.; COHN D. M.; CRAIG T.; FOMINA D.; GELINCIK A.; GRIVCHEVA-PANOVSKA V.; JINDAL A.; KATELARIS C.; KESSEL A.; KINACIYAN T.; LONGHURST H. J.; MARTINEZ-SAGUER I.; RIEDL M.; SCHOEFFL C.; STAUBACH P.; ZANICHELLI A.; ZHI Y.; BALLE BOYSEN H.; FOK J. S.; LI P. H.; HAKL Roman; HIDE M.; PETER J.; MAURER M.
• Year of publication: 2024
• Type: Article in Periodical
• Magazine / Source: CLINICAL AND EXPERIMENTAL ALLERGY
• MU Faculty or unit: Faculty of Medicine
• web: https://onlinelibrary.wiley.com/doi/10.1111/cea.14527
• Doi: https://doi.org/10.1111/cea.14527
• Keywords: ACARE; angioedema; CARE; chronic; registry
• Description: Angioedema (AE) is a paroxysmal, localised and self-limiting swelling of the subcutaneous and/or submucosal tissue, because of a temporary increase in vascular permeability. Recurrent AE is a heterogeneous disease, which is categorised into different types. Clinical and sociodemographic core factors in AE remain insufficiently investigated. A need exists for a large, comprehensive worldwide registry for all types of recurrent AE, applying modern methodologies and parameters from recent scientific knowledge.