Odborné stanovisko Pracovní skupiny pro choroby myokardu a perikardu České kardiologické společnosti pro konstituci specializovaných center pro diagnostiku a léčbu kardiomyopatií

Title in English (Expert consensus statement of the Working Group on Myocardial and Pericardial Diseases of the Czech Society of Cardiology on constitution of specialized cardiomyopathy units for diagnostics and treatment of cardiomyopathies)
Authors

LINHART Ales KREBSOVA Alice KREJČÍ Jan KUBANEK Milos MELENOVSKY Vojtech PALECEK Tomas ZEMANEK David OSTADAL Petr BONAVENTURA Jiri JANUSKA Jaroslav KAPSOVA Eva KUCHYNKA Petr LHOTSKY Jan PUDIL Radek RADVAN Martin TABORSKY Milos

Year of publication 2024
Type Article in Periodical
Magazine / Source Cor et Vasa
MU Faculty or unit

Faculty of Medicine

Citation
web https://e-coretvasa.cz/pdfs/cor/2024/06/14.pdf
Doi http://dx.doi.org/10.33678/cor.2024.088
Keywords Cardiomyopathies; Diagnosis; Expert centers; Expert consensus; Targeted treatments; The Working Group on Myocardial; and Pericardial Diseases of the Czech; Society of Cardiology
Description Cardiomyopathies encompass a diverse group of diseases requiring specialized diagnostic and therapeutic approaches. Unlike more common conditions, some rarer forms demand advanced expertise and access to modern imaging and diagnostic tools. Recently, targeted treatments for diseases like obstructive hypertrophic cardiomyopathy, cardiac amyloidosis, Fabry, and Pompe disease have emerged. These therapies are often high-cost, subject to strict indications, and necessitate intensive patient monitoring. Given the complexity, diagnosis and treatment should be centralized in expert centers with adequate resources and coordination with healthcare payers to ensure an access to these treatments. This document, prepared by the Working Group on Myocardial and Pericardial Diseases of the Czech Society of Cardiology, outlines expert consensus on the necessary infrastructure for specialized cardiomyopathy units, which are expected to offer comprehensive care, including innovative and regulated therapies.

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