First experience of a hemophilia monitoring platform: florio HAEMO

Autoři	ZAPOTOCKA Ester BATOROVA Angelika BILIC Ernest BOBAN Ana ETTINGSHAUSEN Carmen Escuriola KOTNIK Barbara Faganel HRDLICKOVA Radomira LAGUNA Pawel MÁCHAL Jan NEMES Laszlo ZUPAN Irena Preloznik PURAS Gediminas ZOMBORI Marianna
Rok publikování	2022
Druh	Článek v odborném periodiku
Časopis / Zdroj	RESEARCH AND PRACTICE IN THROMBOSIS AND HAEMOSTASIS
Fakulta / Pracoviště MU	Lékařská fakulta
Citace
www	https://www.sciencedirect.com/science/article/pii/S2475037922011736?via%3Dihub
Doi	http://dx.doi.org/10.1002/rth2.12685
Klíčová slova	hemophilia; patient preference; pharmacokinetics; telemedicine
Popis	Background: florio HAEMO is a new hemophilia treatment monitoring application consisting of a patient smartphone application (app) and a web-based dashboard for healthcare professionals, providing several novel features, including activity tracking, wearable connectivity, kids and caregiver mode, and real-time pharmacokinetic factor level estimation. Objectives: To assess intuitiveness, ease-of-use, and patient preference of florio HAEMO in Central Europe using a cross-sectional survey. Methods: This survey was conducted in six Central European countries between 9 December 2020 and 24 May 2021, The online questionnaire included 17 questions about overall satisfaction, ease-of-use, intuitiveness, and patient preference. Adults or children with hemophilia on regular prophylaxis and using the florio HAEM app for a minimum of 1 week were invited to complete the online questionnaire by their treating physician. Results: Sixty-six participants took part in the survey. The median duration for all respondents using the florio HAEMO app was 3 to 4 weeks. Overall, 89.4% of users reported being very satisfied or rather satisfied after using florio HAEMO. Of the 23 respondents who had switched from another hemophilia app, 87.0% indicated that they strongly preferred or preferred using florio HAEMO. Most florio HAEMO users reported that the app was very easy or rather easy to use (97.0%) and intuitive (94.0%). florio HAEMO had a positive impact on daily living, with 78.8% of users reporting that the app was very important or rather important to them. Conclusions: This survey suggests that florio HAEMO is an easy-to-use and intuitive app to assist self-management of home prophylaxis.