International Cooperation in Pressure Ulcers Prevalence, Prevention and Treatment is Challenged by the Lack of National Registries

Authors

POKORNÁ Andrea ÖIEN R.F. FORSSELL H. LINDHOLM C.

Year of publication 2016
Type Article in Periodical
Magazine / Source Česká a slovenská neurologie a neurochirurgie
MU Faculty or unit

Faculty of Medicine

Citation
Doi http://dx.doi.org/10.14735/amcsnn2016S20
Field Other medical specializations
Keywords pressure ulcers; structured wound management; national quality registries; international cooperation; international survey
Description Aim: The aim of this study was to analyse the results from an international survey on prevalence, prevention, and follow-up of patients with pressure ulcers, with a focus on exploring whether a common minimum data set from national quality registries could be used in an international setting. Material and methods: A cross-sectional descriptive survey design was used to obtain data from national PU registries. A questionnaire based on a previously performed review of relevant literature was sent to national experts in the field of wound management (European Wound Management Association; EWMA and European Pressure Ulcer Advisory Panel; EPUAP representatives). Results: The response rates to the international survey were 16% (countries) and 10% (contact persons) within EWMA and 71% (countries) and 47% (contact persons) within EPUAP. Conclusion: The majority of respondents stated that they did not have national registries for PU, but that they registered similar data on a local level. A lack of national data seriously impairs efforts to develop an international research network on patients with PU and to share data and expert knowledge and skills. Although existing data from registries or administrative health records on pressure ulcer management are scarce and inconsistent, the task of establishing a common minimum data set in an international setting seems worthwhile.
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