Třicet let národního registru pacientů na domácí parenterální výživě
| Title in English | THIRTY YEARS OF NATIONAL HOME PARENTERAL NUTRITION PATIENT REGISTRY |
|---|---|
| Authors | |
| Year of publication | 2023 |
| Type | Article in Periodical |
| Magazine / Source | Diabetologie - Metabolismus - Endokrinologie - Výživa |
| MU Faculty or unit | |
| Citation | |
| Web | https://www.tigis.cz/images/stories/DMEV/2023/01/DMEV_1_2023_koudelkova.pdf |
| Keywords | chronic intestinal failure; epidemiology; home parenteral nutrition; national patient registry |
| Description | Home parenteral nutrition is the standard treatment modality necessary for survival of patients with chronic intestinal failure when the gastrointestinal tract is unable to provide adequate resorption of nutrients and fluids. It is a rare disease with an annual prevalence of 5.92 and an incidence of 1.5 per 100 000 inhabitants in the Czech Republic. This epidemiological evidence places it in the group of so-called orphan diseases. The home parenteral nutrition programme in the Czech Republic was initiated in the early 1990s and the number of patients accessing this nutritional support is increasing. The data collection on patients using this treatment modality is needed for negotiations with health insurance companies regarding the reimbursement of health care as well as for guideline development in the field of home parenteral nutrition. The Registry of Home Nutritional Support (REDNUP) was established in 1993 by the Society of Clinical Nutrition and Intensive Metabolic Care (SKVIMP) to collect and analyse data on adult and paediatric patients on home parenteral nutrition. |