European Cross-Sectional Survey of Current Care Practices for Duchenne Muscular Dystrophy Reveals Regional and Age-Dependent Differences

Autoři	VRY Julia GRAMSCH Kathrin RODGER Sunil THOMPSON Rachel STEFFENSEN Birgit F. RAHBEK Jes DOERKEN Sam TASSONI Adrian BEYTÍA María de los GUERGUELTCHEVA Velina CHAMOVA Teodora TOURNEV Ivailo KOSTERA-PRUSZCZYK Anna KAMINSKA Anna LUSAKOWSKA Anna MRÁZOVÁ Lenka MOKRÁ Lenka STRENKOVÁ Jana VONDRÁČEK Petr GARAMI Marta KARCAGI Veronika HERCZEGFALVI Ágnes BUSHBY katherine LOCHMÜLLER Hanns KIRSCHNER Janbernd
Rok publikování	2016
Druh	Článek v odborném periodiku
Časopis / Zdroj	Journal of Neuromuscular Diseases
Fakulta / Pracoviště MU	Lékařská fakulta
Citace
Doi	http://dx.doi.org/10.3233/JND-160185
Obor	Neurologie, neurochirurgie, neurovědy
Klíčová slova	Duchenne muscular dystrophy; standards of care; corticosteroid treatment; functional status
Popis	Publication of comprehensive clinical care guidelines for Duchenne muscular dystrophy (DMD) in 2010 was a milestone for DMD patient management. Our CARE-NMD survey investigates the neuromuscular, medical, and psychosocial care of DMD patients in Europe, and compares it to the guidelines.